Autism and Parental Blame Research Report
Irvana Davies • December 9, 2024
Autism and Parental Blame Research Report.
The Autism and Parental Blame research project seeks to understand how parents of autistic children experience parental blame when they approach health, education, and care services for support.
The project is led by West Midlands ADASS in collaboration with the University of Birmingham, and has been commissioned by NHS England (Midlands Region).
The Project Organisers have been working together with families to identify common concerns and themes and make recommendations for changes to practice that will ensure families feel heard and understood when they look for help.
This Report findings have now been published and more details and the report itself can be found on their website.
The report Autism and Parental Blame: Blamed Instead of Helped, is intended for professionals, policymakers, researchers, and anyone who is interested in improving the lives of autistic children, young people, and their families.
Ofsted want to know what you think about their proposed plans for inspecting schools and other settings where children and adults learn. This includes: early years state-funded schools non-association independent schools further education and skills ( FE and skills) initial teacher education ( ITE ) In summary, they propose: Report cards – these would give parents and carers more detailed information than the current reports, including a new 5-point grading scale to evaluate more areas of a provider’s work and short summaries of what inspectors found. Education inspection toolkits – this tool shows providers and inspectors the evaluation areas that we’ll focus inspections on and how we’ll assess and grade providers (scroll down to see our toolkits). Inspection methodology – changes to how we carry out inspection. Full inspections and monitoring inspections, state-funded schools – we plan to end ungraded inspections of state-funded schools and change our monitoring programmes so that we can check that timely action is taken to raise standards. Identifying state-funded schools causing concern – a new approach to how we’ll place a school into a category of concern. Read the full report and respond to the consultation.
Kids the charity Autism HUB. Are you a young autistic person who has just been diagnosed? Are you a parent wondering how best to support your autistic child? Do you want to connect with people like you? Then The Kids Autism HUB could be for you. The Kids Autism Hub is for young people aged 12 – 25 who are newly diagnosed with autism, young people who are on the diagnosis pathway, and the family members of those young people. It is now possible to self - refer and you can find out more information and how to do this on the KIDS Website .
You may recall that in July, the Local Government Association (LGA) and County Councils Network (CCN), in partnership with ISOS, published a report titled “Towards an Effective and Financially Sustainable Approach to Special Educational Needs and/or Disabilities (SEND) in England.” In their response, NNPCF expressed their hope that the report would serve as a platform for initiating important conversations and welcomed greater involvement with LGA and CCN moving forward. As a result, NNPCF has been credited by ISOS for helping use their report as a “platform” to discuss SEND reform. Read more about the ISOS Report.
SSIF invite ParentCarers of Children with SEND to our third Seminar this year. ‘Support Plans, ISPs, Support Whilst Waiting for EHCNA and EHCP’ is the third in a series of valuable an informative events for ParentCarers that will run throughout the year. This seminar is aimed at ParentCarers who are not sure of the support and information available to them and their families whilst they are waiting for an Education and Health Care Needs Assessment (EHCNA) or an Education and Health Care Plan (EHCP). We will aim to answer questions such as: What is an Individual Support Plan (ISP), and who is it for? What are Reasonable Adjustments and can I expect them to be made for my child? What is the SEN Register? What is SEN Support? What can I do to support my child or young person at home? Are there any workshops or webinars I can access? We have a panel of professionals from the Special Educational Needs and/or Disabilities (SEND) Team, Health and Education, who will talk about what support is available and how to find it. They will also bust some common myths. We are inviting ParentCarers to submit any questions they have for the panel by email, by Monday 20th January 2025, via email, to jody@southendsendindependentforum.org.uk There will also be an opportunity for people to participate in a co-production session to develop a useful route map/flow chart of the Support Whilst Waiting process. Book your ticket here.
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