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TOGETHER WE CAN

MAKE POSITIVE CHANGE

We want greater transparency so that all parents and carers understand what services are available to them and how they can gain access.

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Discover how we work, why we do it, the change we make and why we need you

WHAT DOES IT MEAN TO BE INDEPENDENT?

It means that we have no bias to any service or department, we can speak freely about what is working and what is failing in our SEND community. We can act as a critical friend without prejudice to the local authority and various boards and services, as and when they make decisions. We can raise concerns and divert attention to how these decisions will directly impact our families, we can steer change realistically with high expectations and equality for all. We are included in the vote to agree or disagree with how services are to be created and amended. Our job is to be specific and realistic with the various departments we encounter. Our independence means that we can explain to our community what decisions have been made and why.

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LATEST NEWS

February 10, 2026
We were pleased to recently attend the official opening of three new Autism Resource Bases (ARBs) at Blenheim Primary School, Thorpedene Primary School and Shoeburyness High School. These new provisions mark an important step forward in strengthening SEND support across Southend. The ARBs have been purpose-built to provide specialist support for children with autism within a mainstream school environment. They offer calm, supportive spaces where children can access tailored help, while also having opportunities to learn and socialise alongside their peers in mainstream settings. This approach helps combine specialist provision with inclusion, supporting both learning and wellbeing. It’s encouraging to see continued investment in local SEND services, particularly provision that allows more children and young people to receive the support they need closer to home. For many families, being able to access specialist education locally can make a real difference to daily life, routines and outcomes. ο»Ώ As a Parent Carer Forum, we welcome these positive developments and recognise the importance of expanding specialist support within mainstream schools. We look forward to continuing to work alongside families, schools and the local authority to ensure children and young people with SEND are supported to thrive.
February 10, 2026
Representing Southend at the National Parent Carer Forums' Conference Some of our team recently travelled to Sheffield to attend the joint National Network of Parent Carer Forums (NNPCF) and Contact – For Families with Disabled Children National Conference for Parent Carer Forums. It was a really valuable day bringing together parent carer forums from across the country to learn from one another, share experiences, and discuss the future of SEND support. The conference provided a space for open and honest conversations about the current SEND landscape and the changes families are experiencing. There was a strong focus on SEND reform and alternative provision, alongside discussions about strengthening parent carer forums, building regional capacity, and ensuring long-term sustainability. Throughout the day, the importance of lived experience remained central — highlighting the need for clear communication, accountability and meaningful co-production with families. There was also a focus on improving access and inclusion through a mix of online and in-person approaches, recognising that different families need different ways to engage and be supported. We were pleased that senior representatives from the Department for Education joined the conference, including Claire Burton, Director for SEND and Alternative Provision, who spent the day listening to parent carers and taking part in workshops. The discussions highlighted both the challenges families continue to face and the commitment being made nationally to improve outcomes for children and young people with SEND. One of the most valuable parts of the day was the opportunity to meet directly with Minister Gould, Minister for School Standards. We were able to share real experiences and feedback from families in Southend, helping ensure that local voices are heard in national conversations about SEND policy and practice. It was encouraging to see the Minister engage with parent carers and reflect on the issues being raised. Alongside the formal sessions, it was great to connect with other parent carer forums from across the country, exchange ideas, and build supportive relationships. These connections are so important in strengthening our work locally and learning from what’s working well in other areas. ο»Ώ Overall, it was a full and productive day of learning, discussion and collaboration. We’ll be bringing what we’ve learned back into our work in Southend to continue improving how we listen to families, represent parent carers, and work alongside local services to create positive change for children and young people with SEND.
February 2, 2026
New Autism and ADHD Assessment Providers – Important Update for Parent Carers Mid and South Essex Integrated Care Board (ICB) has announced an important update that may help reduce the long waiting times for Autism and ADHD assessments for children and young people. What’s changing? The NHS in Mid and South Essex has commissioned three new specialist providers to carry out Autism and ADHD assessments under the NHS Right to Choose scheme. This means more choice for families and aims to help children and young people be assessed sooner . New NHS Right to Choose providers GPs in Mid and South Essex can now refer children and young people directly to the following approved NHS providers : Body and Mind Mind Professionals The Owl Centre These providers have been quality assured by the ICB and meet NHS standards for safe, effective care. They will work alongside existing local providers (EPUT, NELFT and Provide CIC) to help reduce waiting times. What services do these providers offe r? The new providers can offer: Autism and ADHD assessments ADHD medication services (starting and adjusting medication), where appropriate Shared care arrangements with your GP, meaning prescriptions and reviews can often be managed locally How referrals work (important) Referrals must be made by your GP Schools cannot refer to these new providers Schools can continue to refer via My Care Bridge to the Community Collaborative as they do now If you feel one of these providers may be suitable for your child, you can discuss this with your GP and request a referral under Right to Choose. What about children already waiting? The ICB is also working with existing services to support children and young people who have: Been waiting over one year for an Autism or ADHD assessment Are approaching transition to adult services Some of these young people may be moved to the new providers to help speed things up. More providers coming soon The ICB has confirmed that four additional providers have also been commissioned and are expected to start accepting referrals later this spring . This information will be updated when details are available. Understanding your Right to Choose Under NHS rules, patients have the right to choose their ADHD (and Autism) assessment provider. However, the ICB encourages families to choose from locally commissioned and approved providers , as these: Meet NHS quality and safety standards Are linked with local services Support joined-up care after diagnosis Some Right to Choose providers only offer assessment and diagnosis , meaning further referrals may be needed for treatment. Read More on the ICB Webpage .
January 13, 2026
(photo credit - David Burton-Sampson MP (Team) - Facebook ) Engaging in National SEND Reform Discussions As you are aware, the Schools White Paper is due to set out the Government’s planned reforms to the special educational needs and disabilities (SEND) system. We are very proud to be involved in these important discussions and are committed to engaging with every opportunity available to ensure parent carer voices are represented. We have attended several ministerial meetings hosted by the Minister for Education, Georgina Gould OBE, MP , which form part of the Department for Education’s wider SEND reform programme. These meetings brought together a range of stakeholders to explore SEND reform through the five key principles set out by the DfE: early, local, fair, effective and shared . Alongside these, we have also taken part in Parent Carer Forum (PCF)–specific meetings , which provide a dedicated space for PCFs to contribute directly to the reform process. We continue to attend both public ministerial and PCF-focused sessions, ensuring that we are fully engaged in all discussions made available to us. Within the recent PCF-specific meetings, solution-focused discussions explored two key areas: • what accountability is needed in a reformed system to support an effective and inclusive mainstream education system; and • what the key foundations are for building trust with parent carers across the SEND system. In addition to live discussions, PCF members shared extensive feedback through chat functions and written comments. This combination of lived experience, shared themes and practical suggestions was fed back collectively to the Minister to support ongoing SEND reform work. The Minister acknowledged both the complexity of the challenges and the value of the constructive contributions shared through Parent Carer Forums, recognising the importance of collective parent carer insight. At a local level, we were also particularly pleased to meet with our MP, David Burton-Sampson , and are grateful for his time and engagement. This meeting enabled us to contribute directly to Southend’s response to the Schools White Paper , ensuring that local parent carer perspectives were included. We remain committed to listening to parent carers, gathering shared experiences, and representing those voices wherever opportunities arise — locally, regionally and nationally — as SEND reform continues to develop. (NB - photo credit David Burton-Sampson

UPCOMING EVENTS

October 8, 2025
🌟Southend SEND Information Day 🌟 Southend SEND Independent Forum (SSIF), and the Southend SEND Local Offer Team are delighted to invite parent carers of children and young people with Special Educational Needs and/or Disabilities (SEND), as well as professionals to our SEND Information Day. πŸ“… 6 November 2025 πŸ•˜ 9:00am to 3:00pm (drop in anytime) πŸ“ Southend Civic Centre, Victoria Avenue, SS2 6ER. Come and meet a wide range of local services and organisations who support SEND families across Southend-on-Sea at our SEND Marketplace. You'll be able to speak with teams including The Specialist Teaching Service, Educational Psychology Service, Early Years Team, and many more. There will also be talks on key topics: β–ͺ 10am to 11am: Transitions from the Children with Disabilities Team to adult social care β–ͺ 11.30am to 12.30pm: Health information session; Decision making; young people with additional needs β–ͺ 1pm to 2pm: Collaboration Counts: Supporting your young person with SEND in education No booking needed, just drop-in at a time that suits you. Free tea, coffee and water will be available. Food can be bought from the Civic Centre cafe, or people are welcome to bring their own. Civic Centre parking is limited, so attendees are advised to use public transport or town centre car parks. Please note, the event is for adults and there will not be a creche provision or activities for children. The marketplace is open to all, but we kindly ask that babies and young children are not brought into the information sessions. Please contact the Local Offer Team at localoffer@southend.gov.uk with any questions. We look forward to welcoming you! Visit the Livewell site for more information.
An advertisement for a coffee and chat event
September 5, 2025
One of our favourite Events is our regular monthly coffee morning, where Parent Carers can get together to share their experiences. Every month we have the Local Offer team with us and invite 1 or 2 additional special guests from for example Health, Social Care, Education and more, to offer guidance and advice. There is also a sensory play creche available for your little ones aged 0-5 with Chaos & Calm. Come along and chat to other ParentCarers, get advice from one of our SEND support service guests and enjoy a hot drink with something sweet. Booking is not required.
poster for seminar with details
May 27, 2025
Transitions in Education
A poster for a drop-in fridays event.
March 10, 2025
We know that some of you have shared that coffee mornings can be difficult to attend so we have organised a Drop-In Event once every half term. The session is open to everyone, ParentCarers looking to find out more about what the Forum does, professionals who want to understand our role and those who would just like to join us for a hot drink and a natter. We will be sharing the dates of the sessions on our social media channels so be on the lookout for future dates. We look forward to seeing you there!
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